It would appear that I am a published “author” now…..as in, I have written something that is in an actual BOOK. Crazy! I was contacted back in November to write about our journey in dealing with rare disease and having a child with Joubert Syndrome. I was told the story would be published as with a compilation of other rare disease stories, and this would be part of a promotion by Siren Interactive to help raise awareness for rare disease.
So, I wrote up our humble little story and sent it off to the editor and didn’t think much more about it. I honestly thought this would be some little pamphlet type thing, nothing major. I had kind of forgotten about it until last week. I received a box from FedEx that had 10 copies of these very official and real looking books in it. Little professionally printed and bound books!! I was astounded to see my name listed as an “author”!!!
In the “more information” section there is a website listed press.sireninteractive.com where you can find out more about the book….and the authors (I blush as I type that!). You can also actually buy this book on Amazon.com. But I am proud of our little story. Check out the website when you get a chance. All the proceeds of the book will go towards the charities each of us authors have chosen….mine being the Joubert Syndrome and Related Disorders Foundation. I will try to post my (edited) story soon.