1 is the new 2

It must be all the rage, seems like all the little ones I know have caught on to a new trend. Moving on the "terrible twos" early must be the cool thing to do. Haley's little personality is becoming more and more defined here lately. She is sooooo sassy and temperamental lately!!!! Everything is a HUGE ordeal. She is very good at letting you know her likes and dislikes. I need to get a video of her showing us she doesn't want something. She waves her arms around furiously until the offending object is gone. She seems to get bored a little more easily and wants to have whatever I have (especially my food, keys, and cell phone) and if she doesn't get it, she is NOT a happy camper. So if you call my cell phone and she is screaming bloody murder....no, I'm not beating her, she just wants to hold the cell phone and I'm not letting her. And if you don't let her do what she wants to do, you better watch out, and you'll get a dirty look!!!!!

She is doing pretty well in "preschool". This week the play therapist (who knew you needed a therapist to play!) told me she did really well drawing with a bingo blottter and was holding and using a crayon appropriately for her age. She is also pleased with how well Haley is pointing at everything in sight. We are having a hard time getting her used to the schedule though. It is hard to work out a schedule that makes sense when we have so much going on with all of the other therapies.

Speaking of therapy, she is doing really well in OT and PT. She is taking steps while the therapist holds her arms. She steps better with her right leg than left leg. We are still a long way away from walking, but she is starting to get the concept. She is also getting better at transitioning from the sitting position to laying position, but still requires some help. This week a teacher from the Governor Morehead program will be coming to see us to see if Haley qualifies for visual therapy. This is a state funded program for visually impaired children. Although Haley sees just fine, she may need help compensating for the irregular eye movements (oculomotor apraxia). I think that is all the new stuff going on.

Thank you all for the thoughts and prayers. It has been a tough couple of weeks, but we are dealing with all of this pretty well.....most of the time. I found a neurologist in Charleston who is a Joubert expert of sorts. He discovered the "molar tooth" sign found on MRI with Joubert. I contacted him via email a few weeks ago and he asked for me to send a copy of Haley's MRI. I'm waiting to hear back from him now. I will keep you updated on any progress and news.

Here are some pictures of us having some fun in the sun this afternoon. She absolutely loved being in the pool even though it is still pretty chilly when you first get in. I hadn't planned on getting her in the pool, but she insisted......see what I mean, 1 is the new 2!!!!!


excuse the mess around the pool, its a constant work in progress!!!