Haley got her new walker in last week. She is doing really well with it. Here are a couple of pictures of her taking her new wheels for a spin. Her favorite thing to do is walk up and down our driveway, and anyone who has ever been to our house knows what a tough hike that is. Our driveway is about 200 yards or so long with a step hill going up towards the road. She can make it the entire way up without any help.
We are getting ready for Christmas. So far we have only managed to get our shopping done for Haley, that was a huge task by itself. I can only imagine each Christmas will become harder and harder to keep from going overboard. Shopping for kids is so much fun!!!
We are also gearing up for a trip to Maryland to the National Institute of Health. Haley is going to be in a research study for people with Joubert Syndrome and other disorders that affect the liver and kidneys. She isn't having any symptoms of kidney or liver problems, but she is at risk and this study will be able to tell us if she is in danger of developing them in the future. I really REALLY dread the flight. We have never flown with Haley and have no idea how she will react. I hate flying as it is but throw a toddler and tons of baggage in the mix and all I can picture is disaster!!! Pray for us!!!! We will keep you all updated on what is going on while we are up there.